Community Leaders urge collective action on hepatitis B #TimeForAction

Local communities across Australia, including the African, Arabic, Chinese, Greek, Indonesian, Italian and Vietnamese communities, are being urged to take action to test, treat and prevent hepatitis B.

Speaking ahead of the World Hepatitis Day and Hepatitis Awareness Week 2015, the President of the African Women’s Group and member of the Hepatitis B Alliance NSW, Ms Rosemary Kariuki-Fyfe said the annual Awareness Week provides a wonderful opportunity for communities to come together and take action to combat hepatitis B.

“Hepatitis B is a serious liver infection and can cause serious health problems, including liver cancer. That’s why it’s important that our people take positive action and get tested, and if found to have hepatitis B, speak to their doctor about regular check-ups and treatment. These simple actions can save lives,” Ms Kariuki-Fyfe said.

Figures released by Hepatitis Australia show there are approximately 218,000 people living with chronic hepatitis B in Australia in 2011 with about 77,000 living in NSW. Liver cancer is now the fastest growing cause of cancer death in Australia.

Chronic hepatitis B disproportionately affects people from culturally and linguistically diverse (CALD) backgrounds, particularly those born in regions where hepatitis B is common such as East and South-East Asia, the Pacific, the Middle East, Mediterranean and Africa.

Ms Kariuki-Fyfe said hepatitis B was a collective responsibility and said success against it would depend on our leadership and everyone working together.

“Everyone can take action. For example, health care professionals looking after people from CALD backgrounds must know that high rates of hepatitis B exist in CALD communities and that people living with hepatitis B often have little or no symptoms until the liver becomes severely damaged. On the other hand, people from CALD backgrounds must also need to ask their doctor for a hepatitis B blood test”.  

Ms Kariuki-Fyfe released a list of actions that members of the African community in Australia can take to tackle hepatitis B:

•    Acknowledge that hepatitis B is a very common in our community.

•    Understand that hepatitis B can lead to serious liver damage, even liver cancer.

•    Know that the most common way hepatitis B is passed on is from mother-to-child at birth.

•    Get tested for hepatitis B. If you have it, there are treatments that can prevent liver cancer.

•    If you have hepatitis B, talk to your doctor about regular checks and treatment options.

“Every Australian has a role to play in the fight against hepatitis B. We should take courage from knowing that we have the tools to test, treat and prevent hepatitis B and make this condition rare in our life. Let’s make it happen,” said Ms Kariuki-Fyfe.

Hepatitis Awareness Week is coordinated by Hepatitis Australia – which has launched several hepatitis related resources including a poster titled Time for Action emphasizing regular liver testing and treatment.

Visit www.mhahs.org.au for more information on hepatitis B and resources related to the World Hepatitis Day and Hepatitis Awareness Week.

Talk to your doctor about hepatitis B (in Australia, all conversations with your doctor remains private) or call the Hepatitis Hotline on 1800 803 990. If you want to use a telephone interpreter, first call 131 450.

Time For Action to prevent lives lost to viral hepatitis.

An urgent call for government action to better equip half a million Australians living with viral hepatitis in combating life-threatening liver disease has been issued by peak health groups.

Calling for increased testing, improved access to liver check-ups and rapid access to new therapies, Hepatitis Australia and the leading state and territory hepatitis organisations warn that 1,000 Australian lives are lost each year due to hepatitis-related liver disease, and without urgent action, deaths from viral hepatitis will increase.

Speaking on World Hepatitis Day (28 July), Hepatitis Australia CEO, Helen Tyrrell said that Australia must never lose sight of the fact that hepatitis B and C are preventable, treatable liver health conditions.

“Chronic hepatitis B and C are liver-destroying viruses that affect half a million Australians – that’s one Australian for every 40 people, more people than the combined populations of Canberra and Darwin – yet only a fraction of these people are being monitored or treated,” she said.

"2015 has been a watershed year in the fight against viral hepatitis with a Federal Government inquiry into Hepatitis C, an advisory committee recommendation for the Government to subsidise new generation hepatitis C interferon-free therapies and improved access to hepatitis B medicines.

“However without urgent action, Australia risks squandering a huge opportunity to help half a million Australians living with chronic hepatitis B and C – that’s why we’re launching our Time For Action campaign today,” said Ms Tyrrell.

The Time For Action campaign aims to highlight the simple but positive actions individuals, communities, healthcare providers and governments can take to combat viral hepatitis.

With a call to ‘get tested, have a liver check-up, and ask about treatment’, the campaign aims to encourage Australians living with chronic hepatitis to protect their liver health. It also includes a call for governments to increase access to liver health services and new treatments and achieve the targets set in the National Strategies.

“It is essential that communities stand shoulder-to-shoulder with people living with hepatitis to ensure we prevent, test, monitor and treat hepatitis B and hepatitis C at every opportunity,” Ms Tyrrell said.

The Time For Action campaign coincides with the release of new research findings from people impacted by hepatitis B and C which identifies significant barriers to testing, liver check-ups and treatment, including negative community attitudes and stigma which deter many people from seeking medical help.

Respondents to the Galaxy Research survey expressed frustration about general practitioners’ lack of knowledge and understanding of hepatitis and long waiting times to see specialists. Sixty-one per cent of those surveyed cited the prohibitive cost of new generation hepatitis C treatments not yet subsidised by the Federal Government as a major barrier to undergoing treatment.

Hepatitis Australia said that Australia needs to use all the tools at its disposal – from hepatitis B vaccination, needle and syringe programs, liver check-ups and antiviral therapy – to reduce the burden of chronic hepatitis B and C.

Pointing to survey respondents’ comments that they wait the best part of a year for liver clinic appointments and are ‘sick and tired of being told to hang in there’ until their liver fails or they develop liver cancer, Ms Tyrrell said governments need to hear the message ‘loud and clear’ that it’s time for action. 

“Many Australians living with hepatitis B and C would like nothing more than to act and start treatment, but many have excessive waits for liver clinic appointments and the new generation of hepatitis C medicines remain out of reach. Now is the time for the Australian governments to set limits on liver clinic waiting times, support expansion of community based hepatitis health services and subsidise new hepatitis C treatments,” Ms Tyrrell concluded.

Click here for more information about World Hepatitis Day   |   View the #TimeForAction launch video  

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