Advocacy Documents

Cost Recovery Implementation Statement (CRIS) Listing of medicines on the Pharmaceutical Benefits Scheme and designated vaccines on the National Immunisation Program 1 July 2019 – 30 June 2020 - Submission

Hepatitis Australia lodged this submission in February 2019. Hepatitis Australia welcomed the opportunity to provide a submission in response to the Public Consultation on the Draft Cost Recovery Implementation Statement (CRIS) Listings of Medicines on the Pharmaceutical Benefits Scheme (PBS) and Designated Vaccines on the National Immunisation Program (NIP) 1 July 2019 – 30 June 2020. 

Hepatitis Australia supports cost recovery but has concerns about the unintended consequences of such significant fees increases and the new processes they purport to fund. 

Click here to download a copy of our submission


Review of the Quality Use fo Medicines Program’s Delivery by the National Prescribing Service (NPS MedicineWise) - Submission

Hepatitis Australia lodged this submission in January 2019. Hepatitis Australia welcomed this Review of the Quality Use fo Medicines Program’s Delivery by the National Prescribing Service (NPS MedicineWise) including its role, objectives and funding.

Click here to download a copy of our submission


My Health Records Amendment (Strengthening Privacy) Bill 2018 - Submission

Hepatitis Australia lodged a submission to the Senate Community Affairs Reference Committee on the My Health Records Amendment (Strengthening Privacy) Bill in September 2018.

Summary Points - The implementation of My Health Record on an ‘opt-out’ basis is not supported by Hepatitis Australia and its members based on the current information available to us and the needs of our communities of interest. An ‘opt-in’ system would be supported and in this submission, in consultation with its members, Hepatitis Australia has identified a number of other ways to enhance the system and improve its suitability for our communities of interest. These include ensuring access to information on the benefits and risks, securing formalised informed consent prior to creation of an individual health record, strengthening legal provisions preventing release of information without consent or judicial review, and creating each health record with security and privacy settings defaulting to the most protective options. 

Click here to download a copy of the submission.


Hepatitis Australia lodged a submission to the Senate Community Affairs Reference Committee on the My Health Records Amendment (Strengthening Privacy) Bill in September 2018.

Summary Points - The implementation of My Health Record on an ‘opt-out’ basis is not supported by Hepatitis Australia and its members based on the current information available to us and the needs of our communities of interest. An ‘opt-in’ system would be supported and in this submission, in consultation with its members, Hepatitis Australia has identified a number of other ways to enhance the system and improve its suitability for our communities of interest. These include ensuring access to information on the benefits and risks, securing formalised informed consent prior to creation of an individual health record, strengthening legal provisions preventing release of information without consent or judicial review, and creating each health record with security and privacy settings defaulting to the most protective options. 

Click here to download a copy of the submission.


Letter from the Department of Health re. maximising the cost effectiveness of investment in hepatitis C medicines - May 2018

Hepatitis Australia received a letter from the Health Protection Policy Branch responding to our letter encouraging the Australian Government to maximise the cost-effectiveness of it's investment in hepatitis C medicines and supporting primary care to deliver the cures for hepatitis C to people living with hepatitis C.

Click here to read the letter

Leading the way to the elimination of hepatitis C: 2018-2019 pre-budget submission

Prepared in November 2017, the Hepatitis Australia Budget Submission explains why it is so crucial to boost hep C treatments over the next three years and the central roles played by primary care, e-health and community awareness to achieve this short term goal leading to the elimination of hepatitis C as a public health threat by 2030. 

Click here to download a copy of the full budget submission.

No elimination without decriminalization! - Declaration of the Hepatitis Community

Released at the World Hepatitis Summit 2017 Hepatitis Australia has declared its support of this declaration.

"We, members and representatives of the viral hepatitis community—a community that includes people living with viral hepatitis, doctors, nurses, social workers, researchers, public health experts, and people who use drugs—are concerned over the growing gap between the enormous impact of hepatitis B and hepatitis C over people who use drugs and their almost non-existent access to prevention, diagnosis and treatment services around the world."

Download a copy of the full declaration. (PDF 1Mb)